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2 yr. ago

  • What I do is challenge this attitude when I see it. People think it's acceptable to reject autistic people socially, and they continue to think this because nobody's ever pointed out the inherent ableism in such an attitude. It's just considered acceptable to feel that way, just like it would have been acceptable in the 1940s for a white person to not want Black people living in their neighbourhood- the same arguments were put forth, that integration could not and should not be forced on people. Now we know that is wrong. It's time to know that social rejection of autistic people simply on the basis of autism is also wrong.

  • I think we agree on far more than we disagree on. However, for me, autism is legitimately disabling- I am prevented from engaging in many normal life activities that non-autistic people enjoy. Partly this is due to extremely severe sensory processing disorder, which I was told is part of my autism diagnosis and not a separate issue. Partly it's due to ableism, which I define as "social prejudice against people with a specific diagnosis"- which is exactly what's happening when an NT prefers the company of a member of a hate group above the company of someone with an autism diagnosis.

  • To be honest, most gluten-containing items that I can think of are quite bland and are used to "carry" less bland foods- pasta on its own is bland, the flavour is in the sauce.

    During my gluten-free years I just found other "carriers" for my flavourful items. Rice is a great example. Potatoes are another. Oatmeal bread is another. I haven't tried gluten-free pasta in 15 years, but I understand it's improved greatly since I needed it.

    For inspiration, I'd look up recipes for those with Coelaic disease (spelled Celiac by Americans). Another common search term is "GF". Gluten free lifestyles are so popular these days, the Internet is flooded with ideas and recipes.

  • As an autistic adult, it makes me incredibly sad that you would prefer to meet a transphobe. Occasionally (not on Beehaw as far as I know) I'm accused of being pedantic and argumentative online, but often the cause is a total misinterpretation of my tone and intent. I find it heartbreaking that hanging out with a transphobe is preferable to trying to understand an autistic person, and in all sincerity I hope you will explore the cause of your ableism so you can overcome it.

  • I think that may be a good idea, because I noticed that when I get up in the middle of the night to use the bathroom, then come back and reattach the hose, the higher pressure is actually more comfortable.

    Last night I slept a little better and didn't push the nasal pillow off in my sleep, so there's some progress.

  • I have an ultrawide and I wish I had room for a second monitor anyway, because I spent a lot of time watching videos on fullscreen.

  • Yeah, it's a big change. My adult son has been using CPAP for about two years and I've seen how much it helps him, so I am not giving up yet by any means. I'm just feeling whiny because I'm so tired of being exhausted and I guess I thought I'd see a huge benefit from day one.

  • Thanks for the kind words. When I say I feel like I'm suffocating, I mean that I feel like I can't exhale properly, which to me feels like suffocating. But it's only my first night with the machine and I don't intend to give up. Ramp is turned on, and the device says I have the nasal pillows placed properly. The device has an SD card and I plan to install OSCAR to get better data, but because of the way the system works where I live, it's better for me not to take out the SD card every single day if I can avoid it (I don't own the machine, it belongs to the health service).

  • This week is being a bit of a roller coaster. I got a CPAP machine yesterday after having been on a waiting list to get one for years. I was so happy to get it! But last night was by far the worst sleep I've had in ages- the machine feels like it's suffocating me, and I apparently pushed it off my face at some point during the night, but the ridiculous app that came with the machine does not tell you what time you removed the mask or for how long, and apparently if you wake up and take a long time to fall asleep again, the app will totally ignore the initial period of sleep.

    So today I'm exhausted and irritable, and woke up to excited messages from friends who were expecting the CPAP to change my life from the very first night, which was difficult to cope with, though of course I know they meant well. I hope things will get better.

  • Well, I'm 51 and female, and I thoroughly enjoy being the age that I am. In fact I would say that I would rather be this age than any other age I've experienced yet. I highly recommend it. I know getting older is not going to be an entirely pleasant experience, but menopause was very like a second puberty, but instead of being self-conscious and insecure, this time I have run out of fucks to give and just do as I please, regardless of what people think. I had hot pink hair for most of the last year, I only gave it up because I'm too lazy to maintain it.

  • My cheat isn't really an awful cheat- there's a woman in my town who runs a small Asian supermarket, who also makes handmade sushi that is just incredible. Anytime I am in there I have to get some.

  • I have nine planted aquariums in my living room.

    I'm also into gaming, when I have a few minutes.

    I'm full-time carer to a 73-year-old man and two autistic offspring who are in their 20s. So besides that and the aquariums, I'm lucky I have time to breathe.

  • The jokey post is true. The difference is whether a user sees this as a bug or a feature. Many of us see it as a feature. If you see it as a bug, maybe Lemmy isn't for you.

    I also don't want to see the Fediverse "succeed". Both Reddit and Facebook were great for a while, then they "succeeded" and enshittification began. The Fediverse is fine how it is, it doesn't need to become the most popular thing on the internet in order to keep my interest.

  • I think the issue is that your are expecting a perfectly seamless, Reddit-like experience, with all the admin work done for you but also always done to your satisfaction. That isn't what the Fediverse is about. It's more of a DIY ethic than a "The admins suck but this is all we have" like on Reddit.

    I'm also not sure what you'd need to "migrate" to a new instance other than yourself. Karma isn't super relevant here.

    My main account is on Beehaw, which has very rightfully defederated with some other instances. When I log in using accounts on other instances, I don't see a massive amount of missed content. In fact I've seen so little of interest that I've stopped looking, it's not worth my time.

  • I'm using Firefox to access on my PC, which makes it even more confusing.

  • You can always set up your own instance if you are disturbed by the actions of admins on instances that you have joined.

    Alternatively, if the instance you are on changes direction, you can easily find a new one. It literally took me about half an hour after I learned about the Fediverse to get myself set up on several instances, then later on I decided which I preferred. But I didn't delete the other accounts- they're still there in case I want them someday.

  • Mine is very different to yours- I'm glad I cut off my toxic family members, but I deeply regret that I had to.

  • I hate to be pedantic, but I call the feeling "gratitude" rather than "thankfulness" because I personally don't believe there's anyone to thank or who could receive my thanks.

    But I'm grateful for many many things. I was able to leave the US twenty-three years ago, and that may be the thing I'm most grateful for. I'm grateful that I recovered from depression seven years ago and have not had a serious relapse (I feel gratitude plays a huge part in that).

    I'm grateful for my kids, for my home, my pets, my health, the beauty of the area where I live, the fact that I got an unexpected windfall that let me pay off my debts and line within my small income.

    My life is good, and I am filled with gratitude for that.

  • I was supposed to sometime in Junior High- 7th or 8th grade- which would have been early 1980s. I decided I was getting my period that day because I knew I would not make it one inch up the rope, and that it would also involve my gym teacher screaming at me in front of everyone. I had already deal with years of humiliation during any task requiring arm strength. It was during the six-week period that we worked on gymnastics, which was a complete horrorshow for this dyspraxic. We learned forward roll (which I could just about do), cartwheels (failed), handovers (failed), rings (failed), rope (didn't participate), and a few other floor moves that I don't remember.

    Thank heavens they let me sub marching band for my PE credits in high school. Though, I didn't march either, I was sidelined because I could not stay in step. Dyspraxia is a bitch.

  • I signed up for a Mastadon account at fosstodon, but I don't use it, so far. I also signed up for lemm.ee just for possible defederation purposes, though I don't use that, either- I like it here, although it's quiet (or maybe because it's quiet).