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2
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128
Joined
2 yr. ago

  • I tried cannabis several years ago (not for headaches, but recreationally with a friend) and unfortunately I didn't have a good experience with it. Could have just been bad timing, but I ended up actually getting a nasty headache with it. Unfortunately it is also illegal here, but maybe if that changes I can give it another shot.

  • You'll be happy to know I did check in with my neurologist, and she prescribed me a round of prednisone that seems to be helping. I did try most of those outside of the cold wet cloth. Others have mentioned ice packs, so between those, that all sounds like something that could be easily tried in the future. Thank you for that!

  • I know of a couple triggers for mine, but there are definitely others out there. I've been using the N-1 Headache app to track them to try to find a more comprehensive list of triggers though.

    Fortunately my neurologist hooked me up with a round of prednisone and that is helping a bit, thank you!

  • Unfortunately I live in the US, where healthcare is considered a luxury. I could go on a full rant about that, and in college even wrote an essay on the subject. Fortunately, my health insurance is actually decent, so I could go to the ER if I wanted.

    The logic makes sense though - basically a positive feedback loop, and you need to break the loop. In this case, I called up my neurologist, who hooked me up with a round of prednisone, and that seems to be helping. I'll keep that in mind though for the future. Never thought a migraine was worth an ER visit, but hey if they can help too then why not.

  • Fortunately I have been going to a neurologist for a while for these migraines and headaches. I'm on a couple different medications to help keep them in check, and fortunately I've had MRIs, EEGs and other tests to rule out potential major problems. I called her up this morning to check with her about it, and she set me up with prednisone which seems to be helping to knock it.

    Unfortunately this isn't even the longest lasting one I've had. That would be about 10 days, and that was miserable, so there is more work to be done to get it better under control.

  • Fortunately and unfortunately I am working on all of those. I keep my eyeglass prescription up to date, I drink water (though I could probably drink more), and I am going to see about getting a sleep study done because I am bad at sleeping. Coffee I try not to drink too much of, but I can always ramp that up too.

  • Fortunately I have been going to a neurologist for a little while, so it's getting checked out. I also called them today and they set me up with a round of prednisone to help knock the current migraine, and that is helping a bit.

    Unfortunately, yeah...without medical intervention, my migraines and headaches are pretty needy. Before the medications I am on now, I was typically getting headaches and migraines almost daily, which was absolutely not fun. It's much less prevalent now, with the obvious exception.

  • Well it probably isn't great that this is far from being the longest I've had then, with that being around 10 days. I have run this by my neurologist, and she said that unfortunately sometimes this can happen. Then again she also told me that the thunderclap headaches I sometimes get are likely also a way in which my migraines manifest, so maybe I should look into a second opinion?

    That being said, I've had MRIs, EEGs and stuff like that to rule out physiological and electrical issues, so presumably I'm not knocking on death's door just yet. I'm planning on having a sleep study done though, as I do struggle at sleeping, so that likely could be a contributing factor.

    As for the neck stretches, do you have any links on how to do those? Happy to give them a shot.

  • Fortunately/unfortunately I can confirm that it would be bizarre if I had menopause as I am both too male and a tad too young for that. 😆 Probably wouldn't be a bad idea to get hormone levels checked though, if for no other reason than to help identify a potential root cause.

  • Right there with you on putting up with them for decades. It is no fun. And I'm a little overweight too which probably doesn't help.

    I've been on amitriptyline for a couple years, now at 30mg. In the very beginning it was helpful, but then it stopped helping so they added Aimovig which has been a godsend. Went from having headaches and migraines almost daily to only a couple times a month. Every now and then I get a nasty one that comes through though.

    Fortunately I called up my neurologist who put me on a round of prednisone and that seems to be helping a bit.

  • Someone else mentioned the ice packs, which besides the weed is the main thing from that list I haven't really tried already. I'll have to give that a try since I do have some ice packs in the freezer...not sure why I haven't thought to try it. I'll probably pass on the weed though. Between legal issues with it where I live and just overall poor experiences in the past with it, just doesn't sound appealing. Glad it helps your wife though!

    And fortunately I was able to get in touch with my neurologist, who set me up with a round of prednisone. That seems to be helping, which is a huge relief.

  • Might have to ask my SO to try giving a head massage to see if that would help me. I'm not normally a massage person, but hey if it can help then I'm all for giving it a shot.

    And yeah...I've been putting up with migraines and headaches for...maybe 20 years now? Typically I can knock them with some combination of excedrin migraine and Ubrelvy, and have a couple different preventatives, but sometimes I get nasty, persistent ones that just wanna hang around for a while. My neurology basically said to treat them all as migraines, even the headaches that can be wildly different in their manifestation.

  • I could at the very least see it being relaxing, which would help reduce stress which in theory could help. Do you just run a bath and get in, or do you put any special bath stuff in it? I'm more of a shower person, myself, so as silly as this sounds I don't know how to prepare the "optimal" bath lol.

  • I've actually been going to a neurologist, so it's funny you mention that. I used to have seizures as a kid and was prescribed keppra for them. I don't recall them having an impact on my migraines then, but maybe others could help there. I'm on Aimovig now which has helped immensely, but every now and then a nasty one like this comes through, so they're looking at upping the dose.

    I ended up calling my neurologist and they put me on a round of prednisone which seems to be helping knock this one out.

  • Hmm...this almost makes me think it is acting like a sort of meditation. Given migraines can be triggered by stress, and in particular (after doing a little googling on my own) these long, persistent headaches seem to be linked to stress, I could see that being useful. I'll have to give it a try. Thank you!

  • Funnily enough, I'm actually on Aimovig now. 70mg, likely looking at upping the dose. For the most part, it has been a game changer. I used to get migraines and headaches nearly daily. Now it's down to a couple times a month, typically pretty minor compared to how it's been. It's just that every now and then a particularly bad one comes in.

    This may be surprising, but this isn't even the worst one I've had on Aimovig. That would have been end of February into early March, when I ended up with a migraine that lasted almost 10 days. That was brutal! They told me then that they could have given me prednisone to help break it if I had mentioned it sooner. So this time I did, and it seems to be helping. Hopefully once we up the dose of the Aimovig, these particularly nasty migraines fall off.

    As for the sumatriptan...unfortunately that doesn't seem to work for me, hence the Ubrelvy which is what made us look into Aimovig as it's also a CGRP inhibitor. Typically the Ubrelvy works if I take it like you mentioned with the sumatriptan, but during these particularly nasty ones it only seems to take the edge off.

  • Wow, a lot of things I can try here, I appreciate it! Normally I take hot showers, but trying a cold shower sounds easy enough.

    The lavender sounds lovely since I like the smell anyway, so I'd be happy to give it a try! Do you have any that you would recommend?

    Unfortunately sumatriptan is a no-go for me...I previously took that before I took the Ubrelvy, but it was mostly ineffective for me. The Ubrelvy typically helps, but in the most severe cases like this one it doesn't seem to. Fortunately the prednisone the doc prescribed seems to be helping, though that seems like a last resort type of thing from what I can tell due to the potential for some nasty problems.

    I'll have to save this tough...there's a ton here for me to try. Thank you very much!