SomeoneElse @ SomeoneElse @lemmy.ca

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3

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217

Joined

2 yr. ago

It is most certainly not easy to revert. I was on it for 15 years and now have permanent, irreversible damage to my macular. I also can’t take hydroxychloroquine at all anymore because I will go blind.

But my doctors messed up and didn’t checked my eyes for over a decade. Once the usual optician spotted it, it was too late. If you see an ophthalmologist every year, they should spot any issue before it’s too late.

I followed my doctors advice (400mg daily for 15 years) and got retinol toxicity anyway. Now I have permanent damage to my macular, can’t take hydroxychloroquine anymore and my lupus is raging. It’s a fantastic drug, and blindness is a very very rare side effect, but for god’s sake insist on being monitored by an ophthalmologist. Current UK recommendations are an eye check before starting the medication, repeated after 5 years and then every year after that. I should have been checked 10 times in 15 years, I was checked twice.

Thank you for asking so I didn’t look like an idiot too! Wait…

Look, I was forced to learn R (very badly) for my PhD (which I didn’t complete). So technically I’m not a nerd (it’s sadder than that). Yay!!

It’s a fairly niche sport, but Amazon had the tennis rights here in the UK. They’ve gone to sky now and the very minimum you’d need to pay is £30 p/m for much less choice in the way you watch matches. As for prime music, they have a good amount of ad-free podcasts, including everything from wondery. I only have prime for the free next day shipping and free returns by collection, but the tennis and podcasts were a really great extra.

I’m in the UK but I’m largely housebound. Prime is life changing for disabled people like myself. I won’t cancel my subscription but I’ll probably pirate anything I want to watch on prime video in future, which isn’t much now they don’t have the tennis rights in the UK.

Any indication of when that might be open? I understand you don’t want to be flooded by too many sign ups at once but you’re not giving any concrete information at all. Wouldn’t it make sense to at least invite the mods of the larger communities currently hosted on feddit.uk to join yours now so they can more easily move their communities over?

My thoughts exactly; from a moderator standpoint it just doesn’t make sense to wait for another UK dedicated instance to open at an unspecified point in the future. It’s too much of an unknown quantity. If I need to move/copy the communities I moderate while I can still access them on feddit, I’m moving them now and to an established, decent sized instance - it’s my best chance of not having to do this again in the future.

I get your point but in this case it’s not JRR Tolkiens estate who’s claiming copyright infringement, it’s a random production company in Sweden or something. A production company in an entirely different country with no real ties to JRRT has decided an independent cafe built on the same street as Tolkien grew up on, opposite the mill he used as inspiration, is harming their asset somehow by calling themselves the hungry hobbit.

When it happened I thought the typeface was the issue rather than the word hobbit. But no.Here’s before and this is after. I can’t get my head around the fact that the production company sued this tiny sandwich shop. It’s so ridiculous!

That’s precisely what happened here. The place had been called the hungry hobbit for years under multiple owners. The current owner bought it, updated some official paperwork and within the first 6 months of her ownership got hit with the “unauthorised usage” bs. She couldn’t afford to fight it. Thankfully the “hungry hobb” is still doing enough business to stay open 12 years later.

Yeah, this guy didn’t have a leg to stand on. There’s an independently owned cafe opposite sarhole mill (inspiration for “the shire”) on the street JRR Tolkien grew up on called “the hungry hobbit”. It’s been called that since 2005 - before the release of the hobbit film. A production company sued this tiny sandwich shop, sitting on a roundabout 3 miles south of Birmingham for the unauthorised use of the word “hobbit”. That was completely egregious imo. It’s now called “the hungry hobb” - they just took down the last two letters on the sign. I really should grab a sandwich from them one day.

Slightly related; I’ve always loved this quote from Aneurin Bevan, former health minister who established the NHS in the UK:

“Illness is neither an indulgence for which people have to pay, nor an offence for which they should be penalised, but a misfortune the cost of which should be shared by the community.”

This is a really excellent take, written with thoughtfulness and without scorn. Nice one @liztliss@lemmy.world 😊

I hadn’t heard of this case but I googled the diary entries and at first pass they do seem very damming - no unlike Lucy lettsby’s notes. But the testimony from multiple experts is pretty clear that they are not confessions but the tangled thoughts of someone suffering from multiple child bereavements. Of course she wasn’t in her right mind, but that doesn’t mean she killed them.

Joanna Garstang, a consultant community paediatrician and designated doctor on a child death review panel in Birmingham, reviewed Folbigg’s diaries and submitted an expert witness report to the inquiry, released publicly on Tuesday.

“Much of my clinical work involves the investigation of unexpected child deaths, regularly working alongside police,” Garstang wrote. “In my opinion, the expressions of self-blame and guilt in Ms Folbigg’s diary fit with those described in the literature or that I have witnessed in my clinical and research practice. I do not consider them true confessions of guilt.”

Garstang said each of those comments was an “expression of self-blame in keeping with published literature” about bereaved parents. “Ms Folbigg is blaming herself for the deaths, she may be considering that her stress caused the deaths. This is in keeping with published literature and not of concern.”

Counsel assisting the inquiry, Sophie Callan, SC, foreshadowed last week that two psychiatrists and a psychologist would also give evidence this week about Folbigg’s diaries, none of whom was expected to say the diaries contained expressions of criminal guilt.

This is something I started doing fairly recently and it’s really cathartic! I’d say 90% of the replies I write to people who are rude or looking for an argument, get deleted without sending.

What does “altfedi” mean? And what content is illegal in Germany and Czechia?

There’s a whole bunch of autoimmune diseases that have no cure, no specific blood test and no specific scan to diagnose them - but they are illnesses/diseases. Lupus is just one of them.

I was expecting the map to look the opposite - respiratory illness in the colder states, not the warmer ones.

Would you need a semicolon then or not?

There was another aspect of the video; Somerset actually made up…